My husband's brother died yesterday. In the daily update from the 21st called Wednesday 8pm, my FIL said that they had discussed going ahead with the chemotherapy. The doctors felt that the potential benefits outweighed the risks. My BIL agreed. He wanted to fight. The first dose was given with the next dose scheduled for 2 weeks later. After about 10 days, they figured he would get an infection from the affects of the chemo on his body, but it only took a few days. The next update was really disjointed. BIL was having a hard time of it. On Monday, we got a call that he was doing really poorly and DH should make arrangements to come out and say good-bye. He and his other brother were supposed to fly in on Thursday and a few friends were coming down on Tuesday. Then Tuesday my FIL called my husband, sobbing on the phone. BIL was doing so poorly, he couldn't breathe, he tried to scream but couldn't scream. He was suffering. He wished he had an off switch. They gave him morphine to sedate him and continued with that as long as he needed it. He was gone by the next morning.
I've been very sad. Much sadder than I thought I might be. I was worried about him, and really rooting for him to pull out and survive. I have shared his condition with my family and people at church. We put him on prayer chains. He seemed to be doing better at one point; he talked wistfully of the things he wanted to do with people. He wanted to take my husband to Great Adventure Park. He didn't want a funeral, but wanted a party before he died instead. But he lost the few weeks he might have had as the chemo did him in. My husband got a letter from his mother that arrived Monday afternoon, after he had already made the arrangements to fly out. His mother was saying that BIL had decided to go ahead with the chemo, and she had been hoping he wouldn't. I guess she knew as much as anyone that mind doesn't always triumph over the physical. She has seen him in some really bad spots through the years with his Cystic Fibrosis. He had no immune system to speak of because of all the anti-rejection drugs. He barely survived the first infection, and it was unlikely he would survive another one. She was asking my husband to come out and see him, that the time had come. That as much as she knew how we wanted him to see our children and for our children to meet him, the vision of any kind of a relationship was not to be. She wrote that on Wednesday, the same day we got the e-mail from FIL. I wish she had called.
DH left this morning to go and see his family. There will be no funeral. He didn't want one. There will be a small memorial when his ashes come back. Only the family in the immediate area will be in attendance. Even his brothers won't be there.
I think it's crap. Funerals are not for the dead, they are for the living. They are a chance to come together, to mourn, to grieve, to share memories and feelings and love. I've been so sad, I've been crying for two days. It feels as bad as when my father died. My feelings are so heavy and my emotional response surprises me and my husband. No one in my husband's family know about it because they don't know me. They barely see me. I am the one who stays home when the other people come to celebrate at weddings or birthdays or holidays. Mostly my dh stays home too, but sometimes he must go there and be a part of things.
I've had such a hard time dealing with the fact that I moved far from my family. That doesn't seem right at all, not at all. I never saw myself as an overly loving person. People have thought I was cold or shy or indifferent. I was accused of being a loner in my own family. When my father was in the hospital when I was in college, I never told my roommates. At least one was amazed that I would be so cool about it, not openly sharing. Somehow through the years I must have changed. I couldn't believe I would move away from my family, but I saw how DH's family seemed to manage it just fine. Don't a lot of people?
I liked my BIL. I exchanged e-mail with him a few weeks before he got sick. It was our first personal correspondence, and it related to Bug's jog-a-thon at school. We talked about school fundraisers and how we resented the high prices they charged for crap and how they got the kids involved with the promise of fundraising rewards. It was very short, but I felt a sort of camaraderie. I sometimes was in the joint e-mail loops between DH and his father and brothers. They exchanged a lot of short things on a weekly basis, with funny little comments about the stories or links they were sharing.
I've heard stories about my BIL over the years. I've always known he would die, but I always hoped he would live a long time, for his sake as well as him family's. My husband looked at the bright side, that his brother got to live a longer life than many people with Cystic Fibrosis. He got to have a girlfriend, a wife and a stepson, he got to have a career. He got to travel. In fact, FIL had just taken him to London in April, just weeks before he entered the hospital. I remember wondering about the timing of it, it seemed rather sudden, but that was kind of FIL's way. They only stayed for 4 days, because FIL doesn't like to linger anywhere. He is always busy with some project or another, and he usually only stays 2 or 3 days when he comes to visit us.
Fortunately he has the wealth and leisure time to make these visits. My family doesn't. Every time I think about flying back to see my family, I look at the expense. Something always comes up--a roof repair, and air conditioner repair, a tax bill, something. DH bought a new computer, DH bought a $1600 round trip ticket to go to see his brother. I was happy he was going even though it was expensive. I had been urging him to go and see his brother from the moment BIL got sick. I wouldn't begrudge that money, even if we have to carry the credit card debt. We try not to do that, so I don't feel like I should buy certain things or spend money. I feel guilty about how I spend so much money on groceries and gas. I end up not driving to as many things because I want to conserve. We are not very conservative with our money--it just seems like there are too many expenses, and I don't have a job.
But now, I just don't know. I'm going to visit my family. I was still living near my dad when he died, but a year later we were 3,000 miles away. I have missed so many things, visiting with my aunts, my one aunt's 90th birthday, and then later her funeral. I've missed seeing my sister's kids growing up. For 10 years they were practically like my kids, and now I feel like they are practically strangers. I might have felt that way anyway as the entered the teen years, but I'll never know. I know that there are so many good experiences I've had in branching out on my own, but I've missed so many things too.
I didn't get to go to my youngest BIL's wedding. It was around the time that Bean turned 1. When I heard he was getting married, I was so excited. I knew it meant a trip back to see them. I wanted to see my husband's family as I didn't get to very often. My husband was in the wedding party. And then it turned out that kids would not be allowed at the ceremony or reception and I would have to miss the wedding. I still wanted to travel to meet people, to have people meet my new daughter or even both my daughters for the first time. I wanted the ones who already knew Bug to see how she had grown. I wanted to walk along the beach with my children or just hang out. I wanted to go. It was an expensive wedding, hugely expensive. My FIL was paying for the airfare and hotel for my husband. Neither of them thought it would be worth the airfare for me to come. FIL happens to be very frugal and conservative and the itinerary was probably chosen more for price than convenience. It involved a very long flight, two layovers, getting in late at night on the first night, and flying back the next night. It made no sense for me to go. I thought maybe we could somehow make a longer weekend of it, but dh had no desire. He thought I was crazy for even wanting to go. He thought I was lucky for not having to go. FIL said I was welcome to fly along, but it was clear he didn't think it was a good idea. I decided I was selfish and unreasonable, and decided just to give up. I would stick to visiting my own family.
So I didn't get to see my late BIL and his wife, even though they were the two I wanted to see. I knew that our opportunities would be few and far between. Maybe if I were the type to say pish posh and just knew what I think people really needed even against their protests, I'd have a better time of it. But I hate when people treat me like that, and I try to be respectful. So here I am, the person who just stays in my house and never gets to visit anyone, save for the people in my family who I pay to fly out. That is they only way they will ever get to visit me. I feel like I'm crazy to be so sad, but I'm sad anyway. I'm sad for my BIL because I know there was a lot more he wanted to do. I remember from the one time he did get to come visit (FIL and the 2 BILs came out while I was pregnant with Bean, and stayed about 2 days--of course) that it was clear he didn't feel that getting to do so many things that other people get to take for granted was necessarily a blessing. I really didn't either. It wasn't fair, but there you have it. It was OK to want more, as far as I'm concerned. No one is guaranteed a long, healthy life, but I think it is totally normal to want one.
Now I'll never get to talk to him again, I'll never have another chance to visit. The times I suggested visiting, it was always made to seem impossible or unpleasant. My husband had finally agreed that we should go and visit this summer if BIL got a little better. DH's hatred for the climate of Florida knows no bounds. He would never willingly visit there, so we never have, save for the time that BIL got married just a few months after my wedding.
In some ways I feel like my mother. I know there were things she wanted that my father was not on board with. My father had these dreams, he could be intemperate in spending money. My mom was a forceful personality who seemed to get her own way so much of the time, but I think it was because she had to give up the big things, like staying in one house until it was paid off. My husband has dreams too, and I can see how they seize a hold of him and he just assumes I'll go along for the ride. I've made big moves twice, uprooting my life both times. I'm still not back in Virginia, I'm still not near my family. I know my husband truly does not feel a need for anyone in his life but me and the children, with only short exposures to them. He could move to Alaska and not need anyone. He loves his parents and brothers, but he doesn't need them the way he needs me. I feel like I need more. I have dreams too, and they don't mesh with DH's. I honestly thought that if he bought another RV (we've owned two already, but dh sold them when he decided they would not work for our family), I would leave him. We need different things. About the only thing that would keep me from leaving is knowing that it wouldn't be all hearts and roses moving back to Virginia and being with my family. There were a hell of a lot of thorns in the past, perfectly normal ones, but good and bad. It wouldn't be perfect.
There is no perfect. I like my life here, but I feel guilty for it sometimes. I know my one sister feels almost betrayed that I left and stayed away for so long. She feels like I don't care.
I just took a walk with my children. It is beautiful, breezy and sunny and just a great day to be alive. So I can't carry on with my rant. I feel somewhat restored. Monday night my husband was holding me and telling me that his life is only happy because I am in it, because I love him. He feels like I'm so strong, and a good patient mother (I chose to accept the compliment even though I don't feel I deserve it). He said the fact that someone like me could love him makes life worth living. So I feel like we can reconnect, and I am sad now that he is gone.
He won't be gone long. His father asked him to change the return date of his ticket from Sunday to Saturday. So he'll arrive tonight around midnight, spend all day Friday doing something, and return at the crack of dawn on Saturday. It seems insane to go through all the hassle and expense of traveling to not stay, to not try and connect with his family. But I'm sure his father is weary, his father wants to sleep, his father doesn't want to have to deal with others who haven't been through his hell for the last months. At least that is my guess, I don't really know. I do know that people grieve in different ways, that people have different personalities and different ways of recharging. I am the have to be around people, even if I don't ever talk to people type. I want to be able to say "No funeral, my foot. People need funerals." But it's not my choice and I don't even know if everyone needs one. Friends and family are gathering. MIL wants DH to meet with some old friends of the family on Friday. DH doesn't want to, but feels like he will have no choice. It doesn't seem quite right, and yet I would want to fulfill a simple wish of my mother's if one of her children died.
My mother is 80 and not in the best of health. She wants me to come and visit her soon. I think I will, and I will stay for a nice long visit.
Good-bye, Jim. I wish I could have known you better. I wish you could have lived for a hundred years. I wish you could have done all the simple things you wanted to do before the switch turned off. I wish you could have seen your brothers one last time. I know your family was proud of you and loved you. Your oldest brother never said it, but he loved you very much. I hope you know that somehow. I am glad you are at peace.
Recent Comments